Objectives of the Thematic Working Group
The Ethics of Health Systems Research Thematic Working Group (TWG) aims to explore what ethical issues arise in relation to health systems research in low and middle-income countries, how they should be addressed, and by whom. The TWG is Co-Chaired by Sassy Molyneux and Dorcas Kamuya, both from Oxford University.
Key activities of the TWG
Thematic working group activities include hosting webinars, workshops, meetings at bioethics and global health conferences, conference panels, and Google Group discussions.
Recently held activities include:
A scientific session on Global Health Systems Research Ethics at PRIM&R’s 2014 Advancing Ethical Research Conference in Baltimore, USA (http://www.primr.org/aer14)
A webinar on Ethics of Health Systems Research in Low and Middle Income Countries in 2014.
A workshop at Johns Hopkins Berman Institute of Bioethics in Baltimore (USA), which considered the ethics in health systems research using three different lens—development, culture and context, and vulnerability and social justice.
A workshop in Geneva (Switzerland) at the Brocher Foundation focused on the ethics issues around specific methods commonly used in health systems research in low and middle-income countries.
The Ethics of Health Systems Research in Low and Middle-income Countries
A Special Issue of Developing World Bioethics Special Issue was published in December 2016, Guest Edited by Professor Adnan A. Hyder and Dr. Paul Ndebele. The Special Issue contains papers on the topic of The Ethics of Health Systems Research in Low and Middle-income Countries.
Publications and Resources
- Ethical challenges in designing and conducting medicine quality surveys
- The ethics of health systems research: Selected guidelines and studies
- Global justice and health systems research in low and middle-income countries, Journal of Law, Medicine & Ethics, 2015
- Applying a global justice lens to health systems research ethics: An initial exploration, Kennedy Institute of Ethics Journal, 2015
- The ethics of health systems research in low- and middle-income countries: a call to action, Global Public Health, 2014
- Improving ethical review of research involving incentives for health promotion, PLoS Medicine, 2012
- Conducting health-related social science research in low income settings: ethical dilemmas faced in Kenya and South Africa, Journal of International Development, 2009
To join this thematic working group or learn more about it, please contact the coordinators, Hayley MacGregor (firstname.lastname@example.org) and Freddy Kitutu. Membership is open to everyone.Join our group